Comments on: Improving access to genetic testing: involving a genetic counselor can help http://facingourrisk.wordpress.com/2008/09/19/improving-access-to-genetic-testing-involving-a-genetic-counselor-can-help/ Facing Our Risk of Cancer Empowered - Notes from the Executive Director Wed, 11 Nov 2009 03:48:27 +0000 http://wordpress.com/ hourly 1 By: Ellen Matloff http://facingourrisk.wordpress.com/2008/09/19/improving-access-to-genetic-testing-involving-a-genetic-counselor-can-help/#comment-25 Ellen Matloff Mon, 22 Sep 2008 13:51:14 +0000 http://facingourrisk.wordpress.com/?p=146#comment-25 If you'd like a reprint of the Am J Bioethics office, feel free to contact our office @ 203 764 8400 and leave your name and mailing address, and we can send you a free copy. If you’d like a reprint of the Am J Bioethics office, feel free to contact our office @ 203 764 8400 and leave your name and mailing address, and we can send you a free copy.

]]> By: Marcia P http://facingourrisk.wordpress.com/2008/09/19/improving-access-to-genetic-testing-involving-a-genetic-counselor-can-help/#comment-24 Marcia P Sun, 21 Sep 2008 20:05:41 +0000 http://facingourrisk.wordpress.com/?p=146#comment-24 Forgot to add that I am not sure if Mr Crichtons comment re "use of ones tissue ..etc" is accurate, M Forgot to add that I am not sure if Mr Crichtons comment re “use of ones tissue ..etc” is accurate,
M

]]> By: Marcia P http://facingourrisk.wordpress.com/2008/09/19/improving-access-to-genetic-testing-involving-a-genetic-counselor-can-help/#comment-23 Marcia P Sun, 21 Sep 2008 20:02:34 +0000 http://facingourrisk.wordpress.com/?p=146#comment-23 http://www.iht.com/articles/2007/02/13/opinion/edcrichton.php Thought that this might be apropriate to post here.. http://www.iht.com/articles/2007/02/13/opinion/edcrichton.php

Thought that this might be apropriate to post here..

]]> By: M http://facingourrisk.wordpress.com/2008/09/19/improving-access-to-genetic-testing-involving-a-genetic-counselor-can-help/#comment-21 M Sun, 21 Sep 2008 02:57:57 +0000 http://facingourrisk.wordpress.com/?p=146#comment-21 Jere is a link to a new journal article which also delves into some of the issues with Myriad and BRCA testing. http://www.informaworld.com/smpp/content~content=a901844382~db=all Interesting article. You have to pay but for some it's worth the price! Here is the abstract: Direct to Confusion: Lessons Learned from Marketing BRCA Testing The American Journal of Bioethics, Volume 8, Issue 6 June 2008 , pages 5 - 8 Ellen Matloff, Arthur Caplan Abstract Myriad Genetics holds a patent on testing for the hereditary breast and ovarian cancer genes, BRCA1 and BRCA2, and therefore has a forced monopoly on this critical genetic test. Myriad launched a Direct-to-Consumer (DTC) marketing campaign in the Northeast United States in September 2007 and plans to expand that campaign to Florida and Texas in 2008. The ethics of Myriad's patent, forced monopoly and DTC campaign will be reviewed, as well as the impact of this situation on patient access and care, physician liability, and the future of DTC campaigns for genetic testing. Jere is a link to a new journal article which also delves into some of the issues with Myriad and BRCA testing.

http://www.informaworld.com/smpp/content~content=a901844382~db=all

Interesting article. You have to pay but for some it’s worth the price!

Here is the abstract:

Direct to Confusion: Lessons Learned from Marketing BRCA Testing
The American Journal of Bioethics, Volume 8, Issue 6 June 2008 , pages 5 – 8

Ellen Matloff, Arthur Caplan

Abstract
Myriad Genetics holds a patent on testing for the hereditary breast and ovarian cancer genes, BRCA1 and BRCA2, and therefore has a forced monopoly on this critical genetic test. Myriad launched a Direct-to-Consumer (DTC) marketing campaign in the Northeast United States in September 2007 and plans to expand that campaign to Florida and Texas in 2008. The ethics of Myriad’s patent, forced monopoly and DTC campaign will be reviewed, as well as the impact of this situation on patient access and care, physician liability, and the future of DTC campaigns for genetic testing.

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